Here's a quick overview of what's going on with Laynee...
The pediatrician heard a heart murmur At her 3 year check up (2 years ago).
We were sent to a pediatric cardiologist who diagnosed Alayna with mild/moderate mitral valve regurgitation. We were told it may remain the same for life, or it may worsen.
At the cardiology check up 6 months later, the echo and EKG results showed a worsening of the leak. Our cardiologist discussed the possibility of surgery to repair or replace the valve in the future.
Subsequent check ups over the next 12 months showed minor worsening, nothing to cause alarm.
About a month ago Laynee started behaving very out of character. She often complained of being too tired to play, go to preschool, eat, walk and do pretty much anything. Her appetite plummeted and she wanted to sleep all the time.
Last Thursday I took her to the cardiologist. She wasn't scheduled for a check up until July, but she was totally off. The echo and EKG confirmed a major change in her valve regurg. The cardiologist scheduled an MRI for may 28th to give us a closer look at her heart.
I took her to the pediatrician this morning because she's not doing well. The Dr sent us to the children's hospital for some additional tests (echo, EKG, CBC, chest X-ray). They gave her some IV meds that have helped her feel lots better!
She needs the surgery soon (to repair the leak in her mitral valve which is causing her current heart failure). The cardiology board will have a meeting Monday to discuss when the surgery will happen.
She's a rock star, and truthfully I think she's eating up the extra love and attention (and the nonstop movie watching)!
At her preschool graduation Wednesday. She would rather have been in bed!
On the way to the hospital
The pediatrician insisted we go to the hospital in an ambulance. Who doesn't want more adventure in life, right?!
Mama and her girly chillin in the ER
IV meds, red popsicles, graham crackers dipped in milk....these are a few of her favorite things...to make her not feel so bad! (and of course the endless supply of kids movies helps too!)
Feeling a bit better. She won't feel 100% until her heart is fixed....but for now we just want to see that darling smile!!!
6 comments:
life is crazy you just never know whats going to happen:) go laynee go prayer going your way love you all
Makelle prayers every single night that her "BFF Laynee's heart will heal." We love your family so much. Please let us know if there is ANYTHING we can do for you! Hugs to all of you!!!!!!!!!!!!!!
I'm praying for your little family Jo. Hope everything goes well with the surgery for that cute little girl!
I never knew you had a blog. I'm praying for your sweet girl! She is literally the cutest- looks just like her beautiful momma. Xoxo
So grateful that she is doing well and there are answers to make her better. She is such a beautiful girl. This world needs her!
The turn around from sad to happy is quite stark in these pictures. Glad they've determined how to fix it!
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